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Dementia guide

Living well with dementia

For the person who has been diagnosed: what helps, starting now.

A diagnosis changes things. It doesn't change who you are.

This page is written for you, the person who has been diagnosed. Many people live well for years after a diagnosis, especially when it comes early. Here is what others in your position have found helpful.

In the first weeks

  • Let yourself feel it. Shock, grief, anger, even relief at having an explanation — all are normal.
  • Decide who to tell, and when. Many people find that telling close friends brings more support than they expected.
  • Ask questions. Write them down before appointments. It's fine to ask the doctor to repeat or write things down.
  • Watch your mood. Depression is common after a diagnosis and it can be treated. A private check-in can help you notice.

Making daily life easier

Memory aids

  • A large calendar or whiteboard in one spot
  • Phone alarms for medicines and appointments
  • A pill organizer, filled weekly
  • Keys, wallet and glasses always in one bowl
  • Labels on cupboards and drawers

Routines

  • Do important tasks at your best time of day
  • Keep a regular wake-up and bedtime
  • Do one thing at a time
  • Let yourself take longer — it's fine
  • Set up automatic bill payments

Keep doing what matters

  • Keep moving. Walking, dancing, swimming, tai chi or Baduanjin support mood, sleep and balance.
  • Stay connected. Keep seeing friends; join an early-stage support group or a memory café.
  • Keep your purpose. Hobbies may need adapting, not abandoning. Volunteering and helping others still count.
  • Look after your health. Blood pressure, hearing aids, glasses, sleep — they all affect thinking.

Plan while you can decide

This is the most important step many people put off. Choosing who will make decisions for you if you can't, and telling them what matters to you, protects your wishes. See legal and money planning.

Driving

Dementia eventually makes driving unsafe, but a diagnosis doesn't always mean stopping immediately. Ask your doctor about a professional driving evaluation, and agree with your family now on how you'll decide when it's time — so it's your decision, not a fight later.

Calm for hard moments

Frustration and worry come with memory changes. Short, simple practices can help: cyclic sighing (one minute), or 5-4-3-2-1 grounding. Tap “Voice guide” and just follow along.

Alzheimer's Association 24/7 Helpline

Call

Free, any hour, for people living with dementia, caregivers and families — including care consultations with master's-level clinicians. Interpreters in over 200 languages: 1-800-272-3900.

NIA ADEAR Center

Call

The National Institute on Aging's information and referral service, weekdays: 1-800-438-4380.

Eldercare Locator

Call

Find local adult day centers, respite, meals, rides and your Area Agency on Aging: 1-800-677-1116.

Frontotemporal dementia · AFTD HelpLine

Call

1-866-507-7222 · theaftd.org

Lewy body dementia · Lewy Line

Call

1-800-539-9767 · lbda.org

Reviewed September 2026. Education only — not medical, legal or financial advice.